STOP. READ. SAVE LIVES.
I do not normally post these types of things but there is a student in my mom’s elementary school named Ryan Dunne. He is nine years old and is a sweat heart. Ryan has a rare type of Muscular Dystrophy called Duchennes.
His condition has been getting worse and he and his family decided to take part in an experimental drug test, and the results were amazing. Sadly the drug has not passed the FDA approval tests, and is after his experimental trial ran up he was no longer allowed access to the medication. The FDA will likely not approve it in time to help this young boy.
The link attached is a White House petition that is 30,000 signatures away from urging the FDA to test/approve the drug and potentially allow Ryan to begin it’s use.
Please take two minutes (that is literally how long it takes to sign) and sign the petition and help this brave nine year old boy. Share this and help spread the word, right now the power of the internet is what has the potential to help save Ryan’s life and help hundreds of others with Duchenne Muscular Dystrophy